Patients and Consumers Resources

• English language
• German language
• French language
• Dutch language

English language

US:

AHRQ - NGC Links to Patient Resources

National Guideline Clearinghouse™ (NGC) has selected web sites that contain information and/or links to information designed especially for patients.

CHEST - Patient Education Guides

Patient education guides used by both physicians and their patients.

UK:

NICE - Patient, Carer and Public Involvement

This section of the National Institute for Health and Clinical Excellence (NICE) website outlines the opportunities available for patient, carer and public involvement in the development of NICE guidance.

PRODIGY - Patient Information Leaflets

Patient Information Leaflets (PIL) are integral part of PRODIGY guidance.

SIGN - Patient Involvement in Guideline Development

The Scottish Intercollegiate Guidelines Network (SIGN) outlines how patients are involved in the development of SIGN guidelines.

AU: Joanna Briggs Institute - Consumer Information Database

Best Practice for Consumers – A database of information in English, Chinese and Arabic languages.

NZ: NZGG - Evidence for Consumer

NZGG offers a variety of resources on evidence for consumers.

Papers:

Kelson M. Patient Involvement in Clinical Guideline Development - where are we now? Journal of Clinical Governance 2001;9:169-74.

Journal of Clinical Governance article, reproduced with permission from Radcliffe Publishing, Oxford.

Kelson M. The National Guidelines and Audit Patient Involvement Unit. Journal of Clinical Excellence 2002;4:194-5.

Journal of Clinical Excellence article, reproduced with permission from Radcliffe Publishing, Oxford.

German language

Germany:

AQuMed/AEZQ - German Clearinghouse for Patient Information (GCPI)

GCP offers a free gateway to reliable consumer and patient information in German language (introduction in English).

AQuMed/AEZQ - Patient Information

Patient information developed within the German National Disease Management Guidelines Programme of the German Medical Society, the Association of the Scientific Medical Societies in Germany and the National Association of Statutory Health Insurance Physicians.

AWMF - Patient and Consumer Guideline Abstracts

German language guidelines for patients from the Association of Scientific Medical Societies (AWMF).

G-BA - Patient Participation Procedures

The Joint Federal Committee informs about the procedures of patient participation in decision making on medical provision in Germany.

IQWiG - Health Information

Health information site of the German Institute for Quality and Efficiency in Health Care.

French language

France: SOR - Cancer patients resources

Gateway to cancer related patient and consumer information in French language.

Dutch language

Netherlands: NHG - Dutch Primary Care Guidelines for Patients and Consumers

The Dutch College of General Practitioners (NHG) presents its guidelines for patients and consumers in Dutch language.