Working groups update
G-I-N PUBLIC goes public!
The Guideline International Network Patient and Public Involvement working group (G-I-N PUBLIC) has just published a research and practice agenda based on an international consultation exercise carried out with guideline developers, patient/consumer representatives, and researchers:
Boivin A, Currie K, Fervers B, Gracia J, James M, Marshall C, Sakala C, Sänger S, Strid J, Thomas V, van der Weijden T, Grol R, Burgers J, on behalf of the Guideline International Network Patient and Public Involvement Working Group. Patient and public involvement in guidelines: international experiences and future perspectives. Qual Saf Health Care. Accepted for publication (Nov 14, 2009).
Patient and public involvement themes were highlighted at the G-I-N conference in Lisbon: in addition to the first plenary devoted to consumer involvement, three workshops and two breakout paper sessions had consumer themes. Thanks to G-I-N and AHRQ support, two consumer representatives, Janet Wale (from Australia and the Convenor of the Cochrane Collaboration CCNet), and Carol Sakala (from Childbirth Connection in the USA and G-I-N PUBLIC steering committee member) contributed very positively to our plenary session and workshops.
Three new people just joined our steering committee: Loes Knaapen from McGill University in Canada, Mary Nix from AHRQ in the USA (replacing Marian James), and Corinna Scheffer from AZQ in Germany, who replaces Sylvia Sänger. Our warm thanks go to Sylvia (our much appreciated past chair for 2009- 2010) and Marian for their nice work with us over the past two years!
We have two main projects for 2009-2010: develop the first version of a toolkit on patient and public involvement, and present a full day pre-conference workshop at the 2010 G-I-N conference in Chicago. The toolkit and workshop will provide practical advice and tools to help guideline organisations develop a patient and public involvement programme “from scratch” and improve the effectiveness of existing involvement methods.






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